Scared

[amys34]

So, I go to see my specialist next Tuesday, a week from today. Two years ago, I was pregnant with our first child. I went in for some routine testing, and was told something was wrong with our baby. We lost our son at 16 weeks, after what seemed like weeks and weeks of testing and anagonizing. Our son was diagnosed with a lethal form of skeletal dysplasia - Thanatophoric Dysplasia. If he would have survived until birth, he wouldn't have lived longer than a few months. I have attached a link, so if some of you wanted to find out what it is. I am not sure who created the website, but this was the same diagnosis we received.

http://anakinssong.com/

I am going to see the same specialist again on Tuesday and he is going to do some measurements and a bunch of u/s to check the babies. I am so scared that something is wrong again. My ob made the appointment three weeks ago and I wasn't worried about it then, but now, as time gets a little closer, I am starting to worry. We did see a genetic counselor last time who said this was a random fluke and the chances of this happening again are less than 1%, but I can't help but be scared. I am trying not to cry as I think about him, which I have been a lot lately.

Thanks for letting me share......

[hednkee]

I can so feel your worry and fear...I just lost one of my babies last week due to severe dandy walker and diaphragmatic hernia....
It is a mothers worst fear, especially if you have been through it.
I have 3 other kids..But my 4 yr old was such a hard pregnancy to go through...They had thought early on that something was wrong with him, and I feared the very worst, but he came out so perfect....

After that though I promised myself I would never get pregnant again, and then here I am...I feel guilty a little because we hadnt planned this pregnancy, and then twins on top of it...I hated being pregnant until I hit about 4 months, and then as soon as I relaxed and started to get excited I found out something was wrong with one of them...

I hope and pray all will be well with your baby, and Im sure it will be...Keep us updated...

[Happygirl64]

Amy, I am sorry that you are so stressed. I did not know that you lost your last one at 16 weeks. At that point you are starting to feel better and think that you are in the clear. I am so sorry about that, I know it must have been very hard. I am sure if they told you that it the odds it would happen again you will be okay. I do not think that I will every stop stressing.

Hednkee,
I am sorry for your loss this past week. The further along you are the harder it must be. It seems like you can not let your self get to relaxed.

I would like to enjoy some of this pg. without stress. I try to tell myself that God has a plan and know matter what I do I have no control over this.

[amys34]

Hey guys!! Thanks for your encouraging words. I only have 4 more days until my doctor's appointment. I am scared and excited at the same time. DH is going with me because I don't think I can go alone and he really wants to be there. I keep thinking, lighting can't strike twice, so everything has to be ok. It's the power of positive thinking and a lot of praying.

Heather - I am sorry to hear for your loss as well. It is such a hard thing to deal with, when it's supposed to be such a happy time. I will keep you in my thoughts and prayers.

Thanks again guys! Take care!

[twomoreinmay]

Amy-
I hope all goes well with your pregnancy. I am glad your husband will be there with you. It would be hard to find out anything if you were by yourself! Good luck and let us know how it all goes.

Maria